Press release

24/02/16

24 February 2016

NCGC develops new evidence-based guidance on motor neurone disease

The guideline presents recommendations on the following key areas:

  • timeliness of diagnosis
  • communicating with patients and their families about the diagnosis
  • the prognosis and ongoing care
  • symptom management, psychosocial support and identification of social care needs for patients and their carers
  • managing the stopping of non-invasive ventilation (NICE clinical guideline 105 has been amalgamated with this guideline)
  • preparing for the end of life.

The evidence review and full recommendations are available now at NICE.